My First Video
I had surgery a few days ago. So while sitting on my parent's couch, trying to not go stir crazy, I put this video together.
View ArticleUps and Downs
Life is ever changing in our household it seems. Lili's diagnosis of Gastroparesis leaves me with yet another medical issue to learn about. Unfortunately, I haven't dedicated the time and attention to...
View ArticleClik here to view.
Small Smiles
I can't just sit here and do nothing. So I've decided to organize a 5K walk to benefit CURED. CURED is a non-profit whose goal it is to raise money for medical research for eosinophilic disorders. I've...
View ArticleClik here to view.
Morgun, Jacob and living with EE
When Jacob was first diagnosed I joined a few support groups, one being a support group for local families living with EE. We met Morgun and his mom Mechelle at a gathering for this support group and I...
View ArticleClik here to view.
Growing Up
So far my blog as mostly dealt with Jacob's EoE. But for this post I want to focus on how proud I am of my babies. Jacob has OCD, ADD and high functioning asperger's. All of this combined with EoE...
View ArticleFrustrations
Back from Maui. The kids had a great time. Although the battle of feeding Jacob was made easy by our hotel, we still had the pain and behaviors to contend with. Family vacations are not really...
View ArticleAn End to a Beginning
Jacob's elimination diet has come to an end. Although we hoped and prayed that it wouldn't happen, that he would be one of the few that would avoid this last step, it happened. Last week, he was...
View ArticleLooking Back or Ahead?
The kids start school next week. Where did this summer go? Jacob will start 2nd grade and Lili 5th. Next week I'll work on how to do Jacob's feeds while he is at school and with Lili, how to get her to...
View ArticleClik here to view.
35!...Make it stop!!!
Tomorrow I turn 35! How in the world did this happen? Remember being 15 and thinking that 30 was so old. That are parents were moronic at best. And that we knew it all. And now here I am. Sure I have...
View ArticleClik here to view.
Jacob's Walk for CURED
Our walk was a huge success. It was a lot of work and I think I gained a few more grey hairs in the process but it was worth it. In our small way we have helped in the search for a cure for not only...
View ArticleSettling In...and RICE!!!!!
Life seems to have settled into a routine of sorts. Our walk for CURED was fantastic and really gave Jacob a sense of empowerment. He has no control over this disease or what happens to him but it made...
View ArticleClik here to view.
Family Vacation?
This is a topic I've been meaning to write about for awhile. I would like to state for the record, family vacations are NOT vacations. I would say they are more like family experiences. When I think...
View ArticleClik here to view.
Scope #5 - Pass or Fail?
After 6 weeks of eating rice, brown rice pasta, rice crackers, and rice cakes we took Jacob back to San Diego for another scope. During this scope they replaced his G-peg tube with what is called a...
View ArticleOne Year Later...
One year ago today, I received a phone call from Jacob’s GI at the time. His endoscopy results showed over 50 eosinophils, he was officially diagnosed with Eosinophilic Esophagitis. That was the...
View ArticleThe Good...The Bad...And the Gluten Free
Last week was my sit down with the kids pediatrician. She had in hand their various lab results. Although I knew what was coming, I don't think I was really prepared for hearing it out loud much less...
View ArticleI hoped it wouldn't but it happened.
Saturday started off fairly well. I got up. Put in my time at gym. Went to my 2nd ever appointment with my new therapist, which I'm really getting into. Then I headed over to Whole Foods and spent...
View ArticleClik here to view.
Long Lost Update
Oh goodness! It's been a very long time since I was on here with an update. Jacob successfully passed his banana trial. We also snuck in maple syrup and soy free earth balance! Unfortunately, he failed...
View ArticleClik here to view.
The Feeding Tube Diet
This week has brought out the mama bear in all of us with children who survive because of their feeding tube. Apparently the new diet trend for blushing brides is a feeding tube. The NG tube is...
View ArticleAnother Ring Added to the Circus
So far Jacob's chicken/turkey trial is going well. Next week is the scope to verify. And although I may not make it through the end of 5th grade, Lili is doing well. So why rock the boat? I keep asking...
View ArticleNational Eosinophilic Awareness Week
National Eosinophilic Awareness Week starts tomorrow. This is Jacob's story. Please share his journey and help spread awareness. We need a cure.
View Article
